I hesitate to write this, and I don't know why. What is it about us that makes us want to crawl into our shell when some trial is upon us? It makes us long for privacy, even when it's not what we necessarily need. This is a strange first paragraph, so let me just jump into it.
Rusty is concerned that Justus could possibly have a disease called neurofibromatosis. He's concerned by the spots he has on his back. He definitely has mongolian spots, and if you know him or have kept him in the nursery, you know what I'm talking about. But he also has what Rusty thinks are "cafe ole spots.' These can be indicative of this disease. I don't really understand this disease. I know it can affect many different things, like bone formation, eye sight, tumor growth, neurological delays, etc. It can affect learning abilities, and language development. Rusty's concern began with Justus' speech delay, but is mostly due to these spots. He just would like to rule this out in his mind. So we are seeing a dermatologist tomorrow. We are nervous. We would like your prayer. We hope the dermatologist can give us a definitive answer, as to whether or not we need to pursue testing for this disease. This disease is untreatable. There would be no course of medicine or treatment. But knowing would make us aware of what could come, and what to look for.
We've been kind of emotional today, and we feel weird writing this. But we want as much focused prayer for our Little Bear as possible! Hopefully, tomorrow, maybe by the time you read this, we will have victorious news to share! But whatever we find, we know our God loves Justus and us generously, and we just want to bring glory to Him in whatever our circumstances.